Perspective...
Earlier I wrote about what swimming has done for Meghan. The thing that saved us. But it has also been really hard, too. Doctors aren't sure why, but it seems that a lot of people who have POTS are highly motivated to do well in all that they do. They are often those who, before their illness, couldn't relax, nerves on edge, and always doing something. That is definitely the case with Meghan and several of the people we have met along the way. Meghan's motivation to do
The Spoon Theory...
During my many searches for answers, I would often come across references to "spoonies" but was never exactly sure what it meant. The author of the Spoon Theory has chronic fatigue syndrome and lupus - POTS also overlaps with chronic fatigue syndrome. She came up with the theory as she tried to describe to a friend what it's like to be sick with an invisible illness. She has been an advocate, blogger, and speaker for those with lupus for over 18 years. She has a website c
Ehler's Danlos Syndrome & Hypermobility
Ehler's Danlos Syndrome (EDS for short) is a disorder that is inherited and passed through genes in families - mainly affecting connective tissues such as skin, blood vessel walls, and joints. Connective tissue is made up of a mix of proteins (collagen is one of these proteins) and other chemicals that provide the strength and the elastic nature of the skin, blood vessels, and joints. There are several types of EDS ranging from a hypermobility type to a rare life threatenin
