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Meg's Story

Postural Orthostatic Tachycardia Syndrome (POTS)

A Form of Dysautonomia

Misdiagnosis & Patient Advocates

Misdiagnosis & Patient Advocates

This past year we have talked to many families with similar stories. Most have seen the same doctors - and share the same stories of...

Mast Cell Activation

Mast Cell Activation

I am continually learning about new things...and it certainly is an important time for discoveries in auto-immune disorders, the immune...

Featured Posts

Perspective...

Perspective...

Guilt...

Guilt...

Is POTS Really Auto-Immune?

Is POTS Really Auto-Immune?

IVIG Therapy

IVIG Therapy

Medications for POTS

Medications for POTS

Funny Things Doctors Have Said...

Funny Things Doctors Have Said...

The first two years in my Mom's words...

The first two years in my Mom's words...

Recent Posts

Back to Reality and the Importance of Meg's IVIG Study...

How One Friend Makes a Difference...

School from Home: What We Have Learned

Helping Someone Navigate a POTS Diagnosis

Stop Living in Limbo

Progress With IVIG

Accepting There is Nothing Wrong with Needing a Plan C...

Working out an IEP With Your School

Motivation & Life Dreams

Our Latest Speed Bump: Folate for Your Brain & Chronic Illness

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