Back to Reality and the Importance of Meg's IVIG Study...
Sometimes I forget that Meghan goes through this once a month. She has made such huge improvements. Neuropathy in her hands and feet is...
Working out an IEP With Your School
Sometimes in life you need a Plan B... Meghan's freshman year of high school ended with the final two months completed at home - mainly...
Motivation & Life Dreams
Meghan has found competitive swimming to be her outlet. Her refuge. Her comfort. Her hope for being normal - as she won't share her...
The Importance of Good Friends
The importance of support is critical to any difficult situation. It's hard when one feels isolated and alone - even in a crowd of...
Life...
I saw this on Facebook...where else. I think of it often these days. A lot of times when I'm driving and there is a good song on, I...
POTS, PANDAS, PANS & Strep Infections
A few years ago, I remember watching a story on 20/20 or 60 Minutes about several high school kids from a small town in New York...
What Swimming Did for Us...
Without a reason or a purpose, we might still be searching for Meghan's diagnosis. Most patients go a ridiculous 3 to 6 years average...
Helping Others to Understand
Understanding an invisible illness is hard. Maybe as hard as handling some of the symptoms. I think if you haven't witnessed it, you...
It's All in Your Head...
Patients with neurological conditions often feel like no one believes them. That it's all in their heads. It's even more frustrating...
Is POTS Really Auto-Immune?
In February 2014, it was announced that a small study had identified a possible bad antibody that was responsible for causing POTS. The...
