Is POTS Really Auto-Immune?
In February 2014, it was announced that a small study had identified a possible bad antibody that was responsible for causing POTS. The...
IVIG Therapy
Meghan is now up to her 10th dose of IVIG. It really seems like years have passed since the first one, although it's less than 1 year. ...
Positive ANA Results
When we first started looking for answers to Meghan's symptoms, doctors began running lots of blood tests. She gave so many tubes of...
Medications for POTS
There are currently no approved medications for someone with POTS. Doctors typically prescribe drugs "off-label" when they are used for...
Water and Salt...and More Water and Salt!
POTS patients typically have low blood volume - which contributes to the difficulties of pumping enough blood through the body. Drinking...
Which Is It? Dysautonomia or POTS?
Both actually. POTS is one of the most common forms of dysautonomia. An estimated 1 million to 3 million Americans have POTS - 75 to 80%...
Funny Things Doctors Have Said...
Okay, maybe not funny at the time. Or not really funny at all. Ever. But here are some of the things we heard along the way - I'm sure...
The first two years in my Mom's words...
Neurological sydromes are on the rise (or maybe just more documented) and understanding them is so hard. I will try to explain things...
The first two years in Meghan's words...
If someone would have told me two years ago that I would have to put my life on hold because I was going to experience dizzy spells,...