Why Write Yet Another Blog?
When Meghan first started with her symptoms, and no one seemed able to help us, I turned to the internet to find answers. There is so...
POTS, PANDAS, PANS & Strep Infections
A few years ago, I remember watching a story on 20/20 or 60 Minutes about several high school kids from a small town in New York...
Perspective...
Earlier I wrote about what swimming has done for Meghan. The thing that saved us. But it has also been really hard, too. Doctors...
The Spoon Theory...
During my many searches for answers, I would often come across references to "spoonies" but was never exactly sure what it meant. The...
Ehler's Danlos Syndrome & Hypermobility
Ehler's Danlos Syndrome (EDS for short) is a disorder that is inherited and passed through genes in families - mainly affecting...
What Swimming Did for Us...
Without a reason or a purpose, we might still be searching for Meghan's diagnosis. Most patients go a ridiculous 3 to 6 years average...
POTS is not Rare...
We hear it often - POTS must be rare. But it's not! Just not well known. Most likely you will have come in contact with someone who...
Helping Others to Understand
Understanding an invisible illness is hard. Maybe as hard as handling some of the symptoms. I think if you haven't witnessed it, you...
Guilt...
Guilt. I think this is one of the biggest reasons that patients who suffer from an invisible illness pretend to be fine. I know that...
It's All in Your Head...
Patients with neurological conditions often feel like no one believes them. That it's all in their heads. It's even more frustrating...
